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Dave · 23rd October, 2014 at 12:48 am

Thaila, Thank you for telling your story! Quite sweet, charming and inspiring.

I have a temporary ostomy and am doing jpouch take down in Dec. Is your ostomy permanent or is Colin going to be hooked up with Stan some day?

Keep up the great work!!
in Los Angeles

    ThailaSkye · 24th October, 2014 at 12:01 pm

    Hi Dave,
    Thanks for the comment! 🙂 Good luck for December, I hope all goes well!

    Technically mine is all temporary, but I’ve told my consultant that I don’t want any more surgery. Everything’s working perfectly the way it is, so why change anything, right? Hehe!

    Thanks again for the comment!

    – Thaila

      PETER McGRATH · 15th December, 2015 at 11:01 am

      Hi Thalia.
      I the work that you do in raising awareness of Crohn’s is extremely valuable.

      I came across you yesterday in the INDEPENDENT newspaper. I recently left The Hope Building Salford Royal Infirmary after a successful bowel resection. I am starting a campaign in the New Year to raise awareness of intestinal failure in general and the great work that ward H8 at Salford Royal Infirmary perform, although inundated with people left ruined by less knowledgeable bowel surgeons.
      I have worked in television for 20 years so I have access to the media.

      I will email you directly. My email address is myiq170@hotmail.com and my name is Peter. Please check your junk mail if you are interested in joining forces in some way.

        ThailaSkye · 15th December, 2015 at 11:32 am

        Hi Peter, thank you for your comment, and I look forward to hearing more in your email! Glad to hear you are safely on the road to recovery!
        Speak soon!

Louise Burke · 9th June, 2015 at 6:48 pm

Hi great to hear your story I have uc and may need surgery in the next 6 months and just reading people story Iam living in Ireland but from East Midlands people like you are a great inspiration I love running to and want to raise money for this fab charity but do not have energy at mo was running 10 k a week up to Xmas last but great to see such positivity from your self
Louise burke

Sonny · 1st December, 2015 at 11:08 am

Dear Thalia,

Your blog is fantastic. Good to see a sister in arms on the subject of bowels….? Can I say that?!? anyway, as a 21 year old gastroparesis gal, It is so encouraging to hear you talk about your weight. I hate not being in control of my weight the way that other people are, its really fucking frustrating, but not something to be ashamed of.

Thanks girl

    ThailaSkye · 1st December, 2015 at 11:19 am

    Hi Sonny, thanks for reading my blog and for the comment! 🙂 I think I’ll always have a battle with weight during my life. And the moment it’s trying to lose weight, but not long ago I was desperately trying to gain weight (and that might happen again in the future, who knows…) But I guess the important thing is staying positive, surrounding yourself with loved ones and enjoying the little things in life (for me, it’s tea and cuddles…) Have an awesome day <3

Anne · 9th December, 2015 at 2:45 pm

Hi Thalia,
just wanted to tell you, that I thought it was fantastic that you came to the MedTech Forum to tell your story live last week. Thank you.
Listening to you, I learned a lot about the needs, options, and social media use of a young modern patient, oops, person 😉 as well as the still remaining communication and information gaps.
I think you are wonderful, just stay the way you are,

    ThailaSkye · 9th December, 2015 at 2:49 pm

    Hi Anne,
    Thank you so much for the kind message, and I’m so glad you liked my session at the forum! I hope it made an impact to the industry! 🙂
    – Thaila

John Ho · 11th April, 2016 at 9:03 am

I felt emotional when I read your blog that you suffer from poor health Crohn’s disease. I got IBS but I need to take some tablets every day that help me from getting any spasm, cramps pain and also during last few months I start to lose one stone of my weight.

    ThailaSkye · 17th April, 2016 at 6:52 pm

    Hi John, sorry to hear that you’re struggling with your IBS. You should definitely be wary of any unexpected weightloss so I’d keep an eye on it and head to your doctor if it persists. Sending well wishes your way!
    – T

Laura · 26th May, 2016 at 3:39 pm

HELP ME THAILA PLEASE. I live in university dormitories college Sara, they are suffering from an IBD (Crohn’s disease – ulcerative colitis rectum), as well as having well endometriosis. Can you help me. I am of Italian nationality and are in Florida for study, for 18 months. Help Sara.


    ThailaSkye · 13th August, 2016 at 12:13 pm

    Hi Laura, Sorry for the late reply I’ve only just seen your comment! I hope things are better for you now?
    – T

Mrs Mae McLaughlin · 4th June, 2016 at 9:42 pm

Have just found your blog & videos and what a great help…I’m 77 and received my Iliestomy & colostomy Oct.’15…finding it very difficult to manage because of leaks,sore skin etc.im finding every 10 days or so my output becomes very bulky resulting in leakages. Any tips please. Have had 6month check-up with surgeon,he organised CT scan and on 9/6/16 examination in day surgery re having reversal which I would like to have as I hate the ostomates, however my Surgeon has said it would be dangerous.ive viewed a few of your videos and Utube blogs. Watching the videos have kind of reassured me,
Please help me as I’m getting downhearted.
Mae McLaughlin

    ThailaSkye · 13th August, 2016 at 12:14 pm

    Sorry for such a late reply – how are you doing now?
    – T

sarah · 7th May, 2017 at 11:52 am

Hello Thaila, as an ostomate myself, I’ve been following you for a while on the internet. Especially your videos ment a lot to me. But I was wondering…. You’ve been so quiet lately? Hope you are OK. Is your recovery going well? Take care, Sarah.

    ThailaSkye · 14th May, 2017 at 10:11 am

    Hi Sarah! I’m glad to hear my videos have helped you! I’m very well thank you, just been super busy! Hope you’re well too! 🙂

Richard · 15th May, 2017 at 11:14 pm

There is nothing wrong with Red Dwarf or drinking tea I happen to like both glad you are ok.

Barbara Lee · 13th November, 2018 at 6:56 pm

Thank you. I know I am viewing things a long time after you made it. But you lifted me out of a very dark place. Me: 69 years old, colonostomy 1.27.2017, total colon removal 7,1,2018. 6 bouts of c-diff, 1 failed fecal transplant resulting in colon removal and creation of ileostomy. Midline incision did not heal at top. Surgically reopened now have wound vac in place to drain and help heal. Been batteling this for 3.5 months. Was really in a down place. Your video about your healing helped me realize that I’m not alone. Thank you from my heart. Barbara

    ThailaSkye · 3rd February, 2019 at 12:20 pm

    Hi Barbara, I’m so glad to hear that I’ve been able to help in some way. I hope you are keeping well.

Tim · 28th November, 2018 at 8:33 am

Well done for being so open. Your story will help a lot of people. I had an ileostomy 40 years ago when I was 25 and it was the best thing that ever happened to me (after 12 years of hell………)
Back then there was no counselling, the equipment wasn’t great and when I left hospital I was given an enormous list of food I couldn’t eat and things I couldn’t do. One of those things was racing cars so to encourage myself to get better I ordered a new engine for my racing car.

I don’t play rugby or go scuba diving but I have successfully raced and rallied cars, unsuccessfully been skiing, been down an olympic bobsleigh run and raced aircraft. So anyone worried about surgery well “just go for it”

    ThailaSkye · 3rd February, 2019 at 1:54 pm

    Hi Tim, that ‘just go for it’ mentality is such a great attitude to have! Glad to see that it’s not stopped you from living life but in fact improved it – I know that feeling!

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