19 thoughts on “Contact

  1. Thaila, Thank you for telling your story! Quite sweet, charming and inspiring.

    I have a temporary ostomy and am doing jpouch take down in Dec. Is your ostomy permanent or is Colin going to be hooked up with Stan some day?

    Keep up the great work!!
    dave,
    in Los Angeles

    1. Hi Dave,
      Thanks for the comment! 🙂 Good luck for December, I hope all goes well!

      Technically mine is all temporary, but I’ve told my consultant that I don’t want any more surgery. Everything’s working perfectly the way it is, so why change anything, right? Hehe!

      Thanks again for the comment!

      – Thaila

      1. Hi Thalia.
        I the work that you do in raising awareness of Crohn’s is extremely valuable.

        I came across you yesterday in the INDEPENDENT newspaper. I recently left The Hope Building Salford Royal Infirmary after a successful bowel resection. I am starting a campaign in the New Year to raise awareness of intestinal failure in general and the great work that ward H8 at Salford Royal Infirmary perform, although inundated with people left ruined by less knowledgeable bowel surgeons.
        I have worked in television for 20 years so I have access to the media.

        I will email you directly. My email address is myiq170@hotmail.com and my name is Peter. Please check your junk mail if you are interested in joining forces in some way.

        1. Hi Peter, thank you for your comment, and I look forward to hearing more in your email! Glad to hear you are safely on the road to recovery!
          Speak soon!
          -T

  2. Hi great to hear your story I have uc and may need surgery in the next 6 months and just reading people story Iam living in Ireland but from East Midlands people like you are a great inspiration I love running to and want to raise money for this fab charity but do not have energy at mo was running 10 k a week up to Xmas last but great to see such positivity from your self
    Regards
    Louise burke

  3. Dear Thalia,

    Your blog is fantastic. Good to see a sister in arms on the subject of bowels….? Can I say that?!? anyway, as a 21 year old gastroparesis gal, It is so encouraging to hear you talk about your weight. I hate not being in control of my weight the way that other people are, its really fucking frustrating, but not something to be ashamed of.

    Thanks girl
    xx
    Sonny

    1. Hi Sonny, thanks for reading my blog and for the comment! 🙂 I think I’ll always have a battle with weight during my life. And the moment it’s trying to lose weight, but not long ago I was desperately trying to gain weight (and that might happen again in the future, who knows…) But I guess the important thing is staying positive, surrounding yourself with loved ones and enjoying the little things in life (for me, it’s tea and cuddles…) Have an awesome day <3

  4. Hi Thalia,
    just wanted to tell you, that I thought it was fantastic that you came to the MedTech Forum to tell your story live last week. Thank you.
    Listening to you, I learned a lot about the needs, options, and social media use of a young modern patient, oops, person 😉 as well as the still remaining communication and information gaps.
    I think you are wonderful, just stay the way you are,
    Anne

    1. Hi Anne,
      Thank you so much for the kind message, and I’m so glad you liked my session at the forum! I hope it made an impact to the industry! 🙂
      – Thaila

  5. I felt emotional when I read your blog that you suffer from poor health Crohn’s disease. I got IBS but I need to take some tablets every day that help me from getting any spasm, cramps pain and also during last few months I start to lose one stone of my weight.

    1. Hi John, sorry to hear that you’re struggling with your IBS. You should definitely be wary of any unexpected weightloss so I’d keep an eye on it and head to your doctor if it persists. Sending well wishes your way!
      – T

  6. HELP ME THAILA PLEASE. I live in university dormitories college Sara, they are suffering from an IBD (Crohn’s disease – ulcerative colitis rectum), as well as having well endometriosis. Can you help me. I am of Italian nationality and are in Florida for study, for 18 months. Help Sara.
    Chiaralaura1

    THANKS TAHILA.

  7. Have just found your blog & videos and what a great help…I’m 77 and received my Iliestomy & colostomy Oct.’15…finding it very difficult to manage because of leaks,sore skin etc.im finding every 10 days or so my output becomes very bulky resulting in leakages. Any tips please. Have had 6month check-up with surgeon,he organised CT scan and on 9/6/16 examination in day surgery re having reversal which I would like to have as I hate the ostomates, however my Surgeon has said it would be dangerous.ive viewed a few of your videos and Utube blogs. Watching the videos have kind of reassured me,
    Please help me as I’m getting downhearted.
    Mae McLaughlin

  8. Hello Thaila, as an ostomate myself, I’ve been following you for a while on the internet. Especially your videos ment a lot to me. But I was wondering…. You’ve been so quiet lately? Hope you are OK. Is your recovery going well? Take care, Sarah.

    1. Hi Sarah! I’m glad to hear my videos have helped you! I’m very well thank you, just been super busy! Hope you’re well too! 🙂

  9. There is nothing wrong with Red Dwarf or drinking tea I happen to like both glad you are ok.

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