One of the things I love about being an ostomy & IBD blogger is getting the chance to voice my thoughts on the current state of stoma care. Today, I attended a Living With a Stoma Summit, sponsored by Coloplast, with the aim to understand where the current gaps in stoma care are, and what sort of things can be done to improve upon it. I won’t go into detail of what was discussed yet (as it was only an initial conversation – still a long way to go in putting together anything formal…) but it was really interesting to hear so many different perspectives and ideas.

Living with a Stoma Summit

The session involved lots of different interested parties which was great to see; from patient associations (such as Colostomy Association, IA Support, Urostomy Association), charities (such as Crohn’s & Colitis UK) and I also got to (finally) meet the amazing Sam Cleasby (aka. So Bad Ass).

Thaila Skye and Sam Cleasby

It was great to be involved – I’m so honoured to be able to take part in these sorts of sessions – it’s thanks to the amazing people who contact me on a daily basis who share their own stories that I am able to speak up as a voice of the ostomy community and represent them as best as possible.

It’s still early days with regards to the outcome from the session, but hopefully these discussions will be a step forward in understanding what can be done to improve the lives of people with stomas. Opening the dialogue (and getting people to listen) is sometimes the hardest first step, but it’s bloody important – and I’m glad we’re getting a chance to speak up.

– T

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