Osto-be or not to be? (…get it?!)

thaila skye off to hospital
Well, yesterday I was so sure of my decision to request a permanent ileostomy… until I spoke to my surgeon. Heh.

After a nice long chat, we’ve decided to close the ileostomy and re-connect my small intestine to my colon, turning the mucous fistula that I have into a ‘proper colostomy’.

thaila skye ostomy surgery 2016

The reasons for this decision are:

– my ileostomy, as well as being wonky and short, was also telescopic. My surgeon said it was unlikely that all these problems could be fixed with a laproscopy, and would need to go in via the midline scar. Additionally, these problems could even reoccur further down the line.
– my remaining section of transverse & descending colon is healthy (it was even back in 2010, and this was still the case when I had the endoscopy through my stoma in 2013)
– considering my colon is healthy, it is likely that the use of the colon will help with hydration (as the colon is the part that absorbs water)
– management of a colostomy is considered easier – the bowel movements are less frequent and consistency is usually thicker

Most importantly though, the main reason for this method is that we keep as much bowel as we can whilst still dropping down to just one stoma. This means that, god forbid, if I have another Crohn’s flare-up in the future, there is more bowel to play with.

So long, Stan.

While I am sure this is the right decision, I am genuinely sad about losing my ileostomy. Despite it being all wonky and short and sore all the time, Stan was kinda cute. He was a very neat little stoma and, let’s not forget, he saved my life. But, sadly, he was not very happy and something needed to change. Instead of having a facelift, however, his time on my tummy is over.

thaila skye Stan and Colin SAD

Stan + Coleen 4EVA

Stan and Coleen thaila skyeDon’t worry – Stan isn’t being laid to rest, he’s just… leaving home. He’s heading off on a new adventure and (hopefully) making friends with my colon (not Colin, the other end of the colon… let’s call her Coleen). There, Stan and Coleen will unite, work hard together and maybe even grow old together. Awh. 🙂

(Jeez… this is the problem when I start naming things; I get emotionally attached to inanimate objects! God knows what I’ll be like when I finally get rid of my old Peugeot 206…)

Officially on the Waiting List

So I asked all my questions, I read all the risks, and I signed the consent form. I am officially on the waiting list for my colostomy surgery… and I’m excited!

thaila skye 25 jan 2016
It makes me feel better that he will be the one doing the ostomy surgery, as he seems like a good’un. He reckons it could be April by the time I’m scheduled in (god damn, it had better not be before the #GetYourBellyOut Birthday Ball on 9th April!)

I will, of course, keep you updated!

– T




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Laura · 3rd February, 2016 at 3:22 pm

Hello Thaila, I’ve been following you for a while. I really hope you’re doing well. May I wish you all the best with your upcoming surgery? Two bags is perhaps too much of a hassle, I have one and I can’t get used to it. But can’t you go for a reconnection? If I would have the choice, I definitely would…

Getting used to the bag is so difficult. The mess with extra seals and rings, the leaks,… How long did it take for you to get used to it?

I’ve had my ostomy for a little bit over a year now. I have tried all kinds of bags, now I’m on Hollister which seems to work. Are you still using Coloplast? If had the old ones for a while, but not yet the new Mio bags…

    ThailaSkye · 3rd February, 2016 at 3:29 pm

    Hi Laura, thanks for the comment and kind words! I don’t want a reconnection/reversal because I’ve heard so many stories of people having bad experiences, getting their old symptoms back, and generally feeling as if they wished they had kept the bag. Besides, having a bag is SO much more convenient! Haha! 🙂
    I currently use the Coloplast Xpro but after my next surgery to have the colostomy, I’ll be trying the SenSura Mio (the new grey one) as its AMAZING! I just don’t use it ATM because the output from both my stomas seem to eat through baseplates as if it was acid coming out of them! Grr! But I’m hoping the colostomy output will be less aggressive! You should definitely get a sample of the Mio at least! 🙂

Mary · 1st March, 2016 at 1:48 pm

A telescopic can certainly be a pain. I’ve personally had one for a number of years and finding ostomy supplies that support it can be difficult. Therefore, taking care of my little ostomy is hard. Convex seals work best for me and I’ve been able to overcome most of my issues, for now. ;P But with a healthy colon I believe you made a very good decision!

    ThailaSkye · 1st April, 2016 at 8:54 pm

    Thanks! Even with convex, it’s still a pain in the arse. No leaks as such, but still always sore, despite trying every seal and paste and powder and fairy dust under the sun! Having one stoma, specifically a colostomy, would generally be much more manageable! Woo!

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