This weekend, my boyfriend Rich took me to Ickworth House in Suffolk. I had never been before, and it was an absolutely lovely day, both in terms of beautiful weather and incredible company. Rich made a pretty darn good picnic too.

 

 

VIDEO:

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Acknowledgements: Music in video is Eddy by Lish Grooves

2 Comments

Susan · 14th May, 2019 at 1:23 am

I saw your video on YouTube. I have an Ileostomy, I am short, fat, ( big belly) short torso, 65 for the next few months and there is no one my age anywhere.
Before my surgery in 2017, I got no response from the ccfa.org at all. No one my age on FB and now, after a bad car accident last Dec, I have no car and a very low budget for one, I feel ugly and have very few friends let alone a man! I cannot imagine a man anymore.
What pouch do you use again? I use a 2 piece by Hollister and a wax ring on my convex barrier but my
surgeon left my navel, (which would be better if I did not have it) which everything leaks into as that side of my stomach needs plaster to make it the same as my right side. I have to change my pouch system every other day to prevent excessive leakage and many other pouches feel too heavy. Sorry for blabbering. I wish I could work for a company that makes these products but there is my age first and foremost and of course I need a car.
I have been frustrated since my surgery and I really have no support system. Many people just do not understand.
Not sure I will get a reply. I hope you feel better soon.

    ThailaSkye · 14th May, 2019 at 6:36 am

    Hi Susan, I’m sorry to hear that you don’t feel like you’ve had much support. Your stoma nurse/WOCN should offer support to you, so I’m sorry to hear that this is not the case. I use Coloplast SenSura Xpro (the older beige range). I would recommend you speak to Coloplast Care because they would love to try and help you: https://www.coloplastcare.com/en-US/ostomy/

    I hope you find some support soon!
    – T

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