This week I am asking my fellow ostomates, is your ostomy temporary or permenant? (Video is here).

My ostomy is slightly complicated. Technically it is temporary because they left parts of my colon in there, ready to be connected, but to just let them rest for a while and recover from the extent of the damage caused by my Crohn’s Disease. However, due to all the complications that I had with a long surgery, the “pointy-down” stoma, the abscess and everything that I had, they said any further surgery could be problematic unless completely necessary. Which was fine by me, because the last thing I want now is any further surgery. I still sometimes consider getting my midline scar revised, but as it’s something cosmetic rather than life-saving, I weighed up the options and decided against it. I asked my surgeon if there’d be any problems further down the line if I kept everything just as it is, and she said that I could even live in to my old age exactly the same as I am now with no problems. So, I guess we’ll have to see.

So how about you? Do you have a temporary ostomy? If so, how long are you expected to have it for? Do you think you’ll miss it when you get it reversed, or will you be happy once it’s been reversed? Or, if it’s permenant, how do you feel about it? Share your story, whether it’s on YouTube, or twitter, or Instagram, or just on your blog, and remember to use the tag #myostomystory.


Stephanie Hughes · 4th May, 2013 at 3:32 pm

I suppose that technically right now it would still be “temporary” but I am set to have surgery next month to remove those last few inches like you have and then it will officially be permanent… and that’s alright with me!

Nicole Bratton · 6th May, 2013 at 6:49 pm

I have a permanent illeostomy. I thought it was weird that all the nurses asked me how long I would have it and I would say forever! Most of them felt bad and sorry for me as I was “too young” as they say. I am 29. I told them that I have been through way too much and whatever will make me “healthy” again I would do. I have had my Stan for 3 months and I wouldn’t change it for anything. I do wish I would have had it sooner so I could have had that time with my family and friends but at least I am better now and can function like a “normal” human being!! Your youtube along with a couple other gals have really helped me stay positive and have a great outlook on things as many people still have that stigma associated with ostomys. I have started to gain weight similar to your story and you are helping me stay motivated to watch what I eat but its hard now that I can eat without pain! Also thanks for introducing me to trulyjess! She is an amazing woman!

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